Marie Skłodowska-Curie Fellow, Foundation for Biomedical Research of La Paz University Hospital (Madrid). Affiliated to Science, Philosophy and History SPHERE Research Unit (CNRS – University of Paris).
Projec title: « Care in Clinical Trials involving Youth. Exploring Vulnerability through Empirical Philosophy in a Clinical Trials Unit ».
Contact: maricri@hotmail.it ; mariacristina.murano@idipaz.es
Areas of specialization
Academic positions
Education
Publications
Dissemination
Service to profession
Service in clinical ethics and bioethics
Professional affiliations
AREAS OF SPECIALIZATION
Philosophy, epistemology, and history of medicine Moral philosophy and bioethics (esp. medical, clinical, research and pediatrics ethics) Medical and health humanities Phenomenology and philosophy of the body Empirical philosophy and qualitative research methods Critical studies on minorities and ages of life (childhood, adolescence and aging)
EDUCATION
- Ph.D. in Health and Social Sciences. Phoenix Erasmus Mundus Joint Doctoral Program in Dynamics of Health and Welfare. Linköping University, Sweden; School of Advanced Studies in the Social Sciences (EHESS) Paris, France; and University of Évora, Portugal (2019).
- M.Sc. in Bioethics, Erasmus Mundus. University of Leuven, Belgium; University of Nijmegen, the Netherlands; University of Padova, Italy (2014).
- M.A. in Philosophy, University of Pisa, Italy (2013).
- B.A. Philosophy, University of Pisa, Italy (2010).
ACADEMIC POSITIONS
- Postdoctoral Research Fellow, National Multicenter Research Project COVIDEHPAD, Coordinated by the French Platform for End-of-Life Research (2020-2021).
- Research Associate to the Research Center Medicine, Science, Health and Mental. Health (Cermes3) UMR CNRS 8211 - Unité Inserm 988 – EHESS Paris (2019-2020).
- Postdoctoral Research Fellow, Center for Bioethics, Children’s Mercy Hospital Kansas City, MO, United States (in affiliation with the University of Missouri-Kansas City School of Medicine, 2018-2019).
- Visiting Scholar at the Department of Health, Ethics & Society, Maastricht University, the Netherlands (March – May 2016).
PUBLICATIONS
Book
Murano M.C., 2019, Critical Paediatric Bioethics and the Treatment of Short Stature. An interdisciplinary study. Linköping Studies in Arts and Sciences n° 764. Linköping University Press : Linköping, Suède.
Peer-reviewed articles
- Murano M.C., Maglio M., Spranzi M., Foureur N. 2021. "The ‘Commitment model’ of clinical ethics consultations : revisiting the meaning of expertise and professionalization". The Journal of Clinical Ethics 32(4) : 287-298.
- Murano M.C., Maglio M., Foureur N. 2021. "Clinical ethics consultation during the first COVID-19 lockdown in France. The ‘Commitment model’: balancing general questions and individual cases”. The Journal of Clinical Ethics 32(2) : 155-164.
- Murano M.C. 2020. “A disability bioethics reading of the FDA and EMA evaluations on marketing authorisation of growth hormone for idiopathic short stature children”. Health Care Analysis 28 (3) : 266-282. DOI:10.1007/s10728-020-00390-1.
- Murano M.C., M. M. Feldt, J. Lantos. 2020. “Parental Concerns on Short Stature : a 15 years follow-up”. The Journal of Pediatrics 220 :237-240. DOI : 10.1016/j.jpeds.2020.01.010
- Murano M.C. 2019. “Hormone de croissance chez les enfants de petite taille ? Pour une approche critique des normes socioculturelles relatives à la petite taille”. Médecine/Science 11(35), 891-895. DOI : 10.1051/medsci/2019173.
- Moore B., J. Garret, L.M. McNolty, M.C. Murano. 2019. “The Strange Tale of Three Identical Strangers : Cinematic Lessons in Bioethics”. Hastings Center Report 49(1), 21-23. DOI : 10.10002/hast.974.
- Murano M.C., J. Slatman, K. Zeiler. 2018. “How socio-phenomenology of the body problematises the ‘problem-oriented approach’ to growth hormone treatment”. BMJ Medical Humanities Online First November 26 2018, DOI : 10.1136/medhum-2018-011548.
- Murano M.C. 2018. “Medicalising short children with growth hormone? Ethical considerations of the underlying sociocultural aspects”. Medicine, Health Care and Philosophy 21(2), 243-253. DOI : 10.1007/s11019-017-9798-6.
DISSEMINATION
Invited Talks
- “De la protection des enfants dans la recherche à l’implication en tant que partenaire des enfants dans la recherche”, Cancers pédiatriques et génomique : un changement majeur ? Regards croisés entre sciences sociales, médecine et associations, Lyon, June 23-24, 2022.
- “Interrogating International Regulations on Research with Human Subjects”, International Symposium on Critical Policy Studies. Exploring the Premises and Politics of Carol Bacchi’s WPR approach, Karlstad University, Sweden, June 15-17, 2020 (postponed to August 2022 due to COVID-19).
- “Critical Pediatric Bioethics and the Treatment of Short Stature”, French Society of Pediatric Endocrinology and Diabetology (SFEDP) Annual Meeting, Paris, June 27 – 28, 2019.
- “Treating children for psychosocial reasons: the case of growth hormone”, Ethics Committee Brown Bag Bioethics Workshop, Children’s Mercy Kansas City, MO, June 17, 2019.
- “Treating children to prevent psychosocial problems: the case of growth hormone treatment”, The Hastings Center lunch talk, The Hastings Center, Garrison, NY, June 13, 2019.
Conference Presentations
- “Biomedical Research Involving Youth: Interrogating the Boundaries of Autonomy and Vulnerability”, 14th World Conference on Bioethics, Medical Ethics and Medical Law, Porto, Portugal, March 7-10, 2022.
- “Critical Paediatric Bioethics and The Treatment of Short Stature”, European Association of Centres of Medical Ethics, The Ethox Centre and Wellcome Centre for Ethics and Humanities at the Nuffield Department of Population Health, University of Oxford, UK, September 12 – 14, 2019.
- [e-poster] “Short Stature, Disability and different Regulations on Growth Hormone in the US and the EU”, International Bioethics Retreat, Paris, June 26 – 28, 2019.
- [poster] M.C. Murano, M.M. Feldt, J. Lantos. “Putting parental concerns on short stature in perspective”, Graduate Medical Education Research Days, Children’s Mercy Kansas City, MO, May 14, 2019.
- [poster] M.C. Murano, M.M. Feldt, J. Lantos. “Putting parental concerns on short stature in perspective”, Pediatric Academic Societies Meeting, Baltimore, MD, April 24 – May 1, 2019.
- [article] “A socio-phenomenological understanding of short stature”, International Merleau-Ponty Circle, Chattanooga, TN, November 08 – 10, 2018.
- “Étude critique des enjeux éthiques du traitement de l’hormone de croissance et les normes culturelles sur la petite taille”, doctoral seminar, Paris Diderot University, Paris, France, May 14, 2018.
- “Medicalizing short stature with growth hormone treatment. A decentralized ethical analysis”, American Society for Bioethics and Humanities, Kansas City, MO, October 19 – 22, 2017.
- [poster] “Exploring the ethical issues of growth hormone treatment for idiopathic short children as a case of medicalisation”, European Association of Centres of Medical Ethics, Institut Borja de Bioética, Universitat Ramon Llull Barcelona, Spain, September 7 – 9, 2017.
- “Growth Hormone Treatment for Idiopathic Short Children: Ethical and Social Aspects”, Research Ethics Assembly, Maastricht University, the Netherlands, May 25, 2016.
- “Rethinking the Medicalisation of Children. Ethical Considerations on Growth Hormone Treatment”, Swedish National Ethics Research School, Linköping University, Sweden, June 2 – 3, 2016.
- “Public Decision Making in the Medicalization of Children. Bioethical Analysis of Growth Hormone Treatment”, Erasmus Mundus Summer School on Dynamics of Health and Welfare, University of Évora and National School of Public Health in Lisbon, Portugal, October 12 – 23, 2015.
- “Complexity of a bioethical analysis in medicalization”, 19th European Conference on Philosophy of Medicine and Healthcare, European Society for Philosophy of Medicine and Healthcare, Bioethics Institute Ghent, Belgium, August 19 – 22, 2015.
Seminars and Workshops Presentations
- “Démarches à accomplir en philosophie de terrain sur le plan éthique et réglementaire. L’exemple de CareInTrials”, Doctoral seminar on empirical philosophy, University of Paris and University of Lyon 3 Jean Moulin, June 14th, 2021.
- “La prise de décision pour et avec l’enfant dans les essais cliniques. Questionnements éthiques, épistémologiques et méthodologiques en bioéthique pédiatrique” Seminar online organized by the research unit “Corps et dynamiques conflictuelles” of the UMR 7367 Dynamiques européennes (DynamE), Strasbourg, February 3rd, 2021.
- “Présentation des monographies de l’EHPAD et de l’HAD en Île-de-France”. Online workshop within the study research project COVIDEHPAD, organized by the French Platform for End-of-Life Research, December 1st, 2020.
- “Bilan des inclusions Île-De-France (Mai – Juillet 2020)” with M. Lancelot. Workshop within the study research project COVIDEHPAD, organized by the French Platform for End-of-Life Research, University of Paris, Paris, September 8th, 2020.
- “COVID-19 et éthique clinique : quelle pratique au Centre d’éthique clinique ?” with N. Foureur, M. Maglio et A. Rayapoullé. Center of Clinical Ethics Cochin Hospital, Paris, June 25th, 2020.
SERVICE TO PROFESSION
Reviewer for Clinical Ethics, Revues des Sciences Sociales, the Journal of Clinical Ethics, the American Journal of Bioethics, the American Society for Bioethics and Humanities (Diversity, Disparity and Inclusion Category), Medicines, Health Care and Philosophy.
SERVICE IN CLINICAL ETHICS AND BIOETHICS
- Clinical ethics consultant at the Center for Clinical Ethics, the Greater Paris University Hospitals (Assistance Publique -Hôpitaux de Paris, or AP-HP). March – December 2020.
- Clinical ethics consultant at Children’s Mercy Kansas City, Kansas City, MO, USA. 2018 – 2019.
- Participating in ethics consultations, at San Giuseppe Hospital, Empoli (Florence) Italy. 2012 – 2013.
- Trainee at the Committee on Bioethics (DH-BIO), DG I- Humans Rights and Rule of Law, Council of Europe, Strasbourg, France. March 4 – July 31, 2013.
PROFESSIONAL AFFILIATIONS
- European Academy of Paediatrics (2021)
- French National Platform for End-of-Life Research (2020)
- The International Merleau-Ponty Circle (2018)
- American Society for Bioethics and Humanities (2017)
- Medical Humanities and Social Sciences Network Linköping University, Sweden (2017)
- European Society for Philosophy of Medicine and Healthcare (2014)
- Italian Bioethics Committee “Consulta di Bioetica Onlus” (2012)